HEARD Study Team, BA, MS, MPH, PhD, MSW

HEARD Study Team
University of California, San Francisco

The HEARD (Hospice & End-of-life care for Alzheimer’s and Related Dementias) Study aims to: (1) Identify experiences of care and elements of ideal and desired high-quality ADRD end-of-life care, from the perspective of bereaved caregivers of people with ADRD from populations that experience worse end-of-life care and outcomes, using a survey and two interviews; (2) Document hospice organizational practices and policies that influence the provision of hospice and end-of-life care for people impacted by ADRD and professional perspectives on opportunities to improve care, through interviews with hospice professionals and organizational case studies; (3) Develop a prioritized set of recommended services, clinical practices, and policies for improving hospice and end-of-life care for ADRD using focus groups and a modified Delphi process with bereaved caregivers, policy makers, and experts. Our team is large and includes: Principal Investigator: Krista Harrison, PhD; Faculty collaborators: Alexander K. Smith, MD, MPH, MS; Lauren J. Hunt, PhD, RN, FNP-BC; Jennifer James, PhD, MS, MSW; Lingsheng Li, MD, MHS; Jasmine Santoyo-Olsson, DrPH, MS; Rebecca L. Sudore, MD; and Dan Dohan, PhD; Staff collaborators: Salish Harrison, BA; José Johnson, MS; Shira Rutman, MPH; Sarah Ngo, MLIS; Clarissa Ferguson, MPH; Sherry Yam, MSW, LCSW; Postdoctoral fellow collaborators: Niousha Moini MD, MPH, and Juliana Friend, PhD. Learn more about the HEARD Study at https://heard.ucsf.edu/

Presentation(s):

• RPD209 - “Nobody Told Us”: Inequities in End-Of-Life Dementia Care

  Thursday, March 5, 2026
  2:30pm - 4:00pm PST

  Disclosure(s): No financial relationships to disclose